Thanks, in case you missed it though, 90% false negative means you could have received a negative on your test but it can easily be false. The normal tests are almost worthless, especially for men where testosterone helps a lot and reduces flexibility. People with hEDS also often have T4 -> T3 conversion problems and can benefit from supplemental T3. Endocrinologist tend not to know this which is strange because it’s kind of their job so it’s yet another thing you’ll have to figure out yourself. The proper way to check for hEDS is by using to rare comorbitities which co-occur in families with hEDS at a vastly higher rate, i.e. it’ll be almost impossible for a family to have this many seemingly independent things wrong with them by chance without a common hEDS cause. See https://ohtwist.com/about-eds/comorbidities for an extensive but by no means exhaustive list. One of the things not on the list is general and local anesthesia resistance. Dentists will not believe that you’re still in pain after using 2x the dose, or you make wake up under general.

Late response, apologies.

Saw the doctor today and brought this all to him. He has opened cases with and referred me to two specialists: one for the potential long covid symptoms, and one who will be taking another and more thorough look at the hypermobility and associated symptoms.

This information would have never reached me in such an actionable format if it weren't for your detailed comments. Thank you, I really appreciate it!

My pleasure, it’s a bit of a hobby for me. I hope you manage to find your answers.

I should really get tested for that. I have ADHD and my fingers can do weird crap and I have had 2 suffers and 1 person who has a similar condition tell me I should get checked for it... I just feel weird saying "hey doctor some people told me I might have weird bendy disease, can I have a specialist referral". Without any actual complaints I feel silly